Quality of life among adolescents with epilepsy: An outpatient based study, Khartoum, Sudan

Main Article Content

Inaam N. Mohamed
Sarah E.Mohamed

Abstract

ABSTRACT


Background The term “Quality of Life (QOL)” refers to the physical, psychological and social aspects of health. Several studies attempted to measure the QOL among epileptic patients using either generic or specific instruments. In adolescents the impact of epilepsy on life style and QOL is even more evident. The objective of this study is to measure the QOL and to identify the effect of gender, epilepsy classification, antiepileptic drugs (AEDs) and control of seizures on QOL in adolescent patients with epilepsy.


 


Methods This is a cross-sectional, observational study, conducted in outpatients at Gafer Ibn Auf Specialized Hospital and Soba University Hospital. Fifty patients were enrolled in the study and the QOL was measured using the tool Quality of Life in Epilepsy for Adolescents (QOLIE-AD-48). Data was analysed using statistical package for social sciences (SPSS).


 


Results The quality of Life total mean score for patients was 78.95±12.9. The highest mean score was for school behaviour domain (88.83±24.56) and the lowest score was for stigma (68.08±19.18).  Males with epilepsy had higher score for QOL as compared to females. Patients in basic school had significantly higher total QOL score than those in high school. The total score for QOL is significantly lower in patients with generalized-motor-tonic-clonic seizures, non-compliance to AEDs, on polytherapy and those with partial response to treatment (p  <0.05).


 


Conclusion Epilepsy has impact on quality of life in adolescents with epilepsy especially in the stigma and attitude towards the disease domains. Psychological evaluation and intervention are of great value to help patients cope with their illness. Transitional clinic to take over the care of adolescent patients for easy transfer to adulthood care is recommended.

Article Details

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Original Articles

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